A snapshot of life and living with EDS,POTS, and Hip Dysplasia
Friday, April 20, 2012
A Peek into POTS
Along with EDS, I am dealing with POTS: Postural Orthostatic Tachycardia Syndrome, a dysfunction of the autonomic nervous system. It is found in approximately 1/3 to 1/2 of those with EDS, hypermobility and classic types. I just found this great (but long) video from DINET.org on POTS. No one can see the challenges with EDS unless there is a visual cue. When I wear my elbow or knee brace, I get questions like "did you hurt yourself playing volleyball?" ".....basketball?" Well, no. Either of those would probably do damage to me! (But I don't say that.) POTS is even more "invisible". There are no braces or ice packs to give anyone a clue that I'm in the midst of a very real challenge during a flare up. I think this video gives a good glimpse into the hows, whys and the what-it's-like of POTS.
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