This past weekend brought 70 degree weather and with it, the first time I felt so good in a LONG time. Anything over 80 degrees makes me feel pretty awful. The heat is back today but this weekend gave me hope that I'll really will be feeling better within the next month or two.
During the last couple of months, I have had a hard time sitting at the computer for more than a minute before I'd feel exhausted and develop extreme nausea and the feeling like someone punched me in the stomach. Hense the lack in posts, email, ect. School and working out have also become extra difficult with brain fog, shear exhaustion, weakness ect. Since I also have EDS, putting off a good workout or even moving around is not an option........that is if I don't want to get right back to where I was at the beginning of this year (joints shifting, subluxing, and very painful ............NOT FUN. But the workout has easily been taking the entire day as opposed to an hour or two. My physical therapist is so encouraging but insists that as long as ALL of the 16 exercises are done and there is a day off inbetween, my "Pokealong" workout is just fine.
It has certainly been a challenging and at times a very frustrating year. I had to do a lot of letting go when I wanted to take over and make myself study or workout. I don't make daily 'schedules' and plans anymore because I know that my day is going to be totally unpredictable with POTS. I really just have to go with the flow. There have been many times when I hated doing it but I had to close my physics book because in reality, with all the brain fog and inability to understand a sentence, I needed to find something else that I COULD do and be a little bit more productive in.....although sometimes it was nothing.
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