Something Holding Me Together

A snapshot of life and living with EDS,POTS, and Hip Dysplasia

Sunday, January 26, 2014

Photography Blog!

alana fuller photography
Posted by Alana at 4:22 PM No comments:
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Alana
In 2011, I was officially diagnosed with Ehlers-Danlos Syndrome, a rare connective tissue disorder, along with Postural Orthostatic Tachycardia and Neurally Mediated Hypotension. I also had hip dysplasia in both hips but had reconstructive surgery to fix it. This blog is about my life and dealing with theses diagnoses.
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Resources

  • Silver Ring Splints
  • Arnicare.com
  • STOP POTS Virginia
  • International Hip Dysplasia Institute
  • Hip Dysplasia
  • Physical Therapy of Central Virginia
  • POTS video from DINET.org
  • POTS place
  • Neurally Mediated Hypotension (NMH)
  • Ehlers-Danlos Syndrome, Hypermobility Type

My Blog List

  • Living with Ehlers Danlos Syndrome
    Gastroparesis Awareness Month: Smash GP
    5 years ago
  • Gumbo Lily
    Hello!
    6 years ago
  • Plain Ol' Vanilla
    Walk With the Wise Wednesday
    7 years ago
  • Our Life with Ehlers Danlos Syndrome
    Rinse and Repeat: Low Pressure Headache
    9 years ago
  • Pain with Purpose
    Notice: New Website
    9 years ago
  • The Beauty of the Lord
    Fall Here
    9 years ago
  • Jailbirdcat
    Serious News.
    9 years ago
  • Sweet Home Livin'
    Better Breakfast Party by Tryazon.com
    10 years ago
  • Dusty Nettles
    day lilies
    11 years ago
  • STOP POTS (and Dysautonomia!)
    Find Your POTS cause: Lyme Literature Round Up
    11 years ago
  • Not Broken Just Bent
    Need Some Hope.
    11 years ago
  • CaringBridge / Allison Workman / Welcome

Labels

2012 Recap and New Year (1) Art (8) Bear Xing (1) books (1) bugs (1) cats (2) Champion Napper (1) Cooking (2) County fair (1) EDS snapshot (24) fall 2012 (3) Finding Joy in the Simplest of Things (1) Fire Station (1) Five Days and Counting (1) For The POTS Dictionary (2) From the general himself (1) fun (6) funnies (1) gluten-free (1) Gone Surfing (1) Harrier Hawk Glider (1) Her Highness Olivia Rose (1) Hip Dysplasia (9) horses (4) Humor Me (5) Montpelier (1) Music (6) On My Mind (14) Picture 101 (1) Port (1) poster (1) POTS (17) random (21) smoothies (2) snow (1) Spring Flowers (1) Summer 2012 (11) summer 2013 (2) Summer re-cap (2) Surfing (1) Surgery (4) Thanksgiving 2012 (1) The Super Sweet Blogging Award (1) Verse of the week (19)

Blog Archive

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  • ▼  2014 (5)
    • ▼  January (1)
      • Photography Blog!
    • ►  March (1)
    • ►  May (2)
    • ►  November (1)
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